Survey on the usefulness and effectiveness of the DX¶-introduced chronic disability registry
- International Journal of Family & Community Medicine
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This survey presents methods for enhancing and promoting health information for each life course, especially resilient way of life course, to introduce an example of surveys for realization of the field of disability health. In this survey, we will verify the usefulness of data utilization related to health from the viewpoint of self-management performed by “individuals” such as persons with disabilities/families. To this end, we will first develop and evaluate onset/exacerbation algorithms in normal times using biometric information sensors and environmental sensors. Next, assuming an emergency with health risks, we will verify them by measuring their changes. In addition to a qualitative survey, we will propose “matters necessary for preparation for normal times” from the perspective of the parties concerned. Through these, we will explore the usefulness of data utilization for “individuals” and “groups” while adding the perspectives of patients/parties.
disability registry, DX (digital transformation), PHR (personal health record), individual life course, wearable device, outcome information, resilience (resilient way of life course), perspectives of patients/parties